Written by Noélle Booyse
Article originally published in the September issue of JOY! Magazine
Finding God in the Storm of Cystic Fibrosis is Noélle Booyse’s deeply personal account of motherhood, faith, and perseverance after her second son, Luke Malachi, was diagnosed with cystic fibrosis at only six weeks old. His rare class 1 gene mutation had no available treatment, and the diagnosis marked the beginning of hospital admissions, infections, feeding difficulties, and several surgeries. Booyse writes honestly about the fear, exhaustion, and uncertainty that followed, allowing readers into the moments when she felt overwhelmed, as well as the small victories that gave her strength to continue.
Faith in the middle of the battle
This is not a testimony written after every problem has been resolved. Its strength lies in Booyse’s willingness to show where she found God while the storm was still raging. His presence became real in hospital corridors, sleepless nights, difficult medical decisions, and the support of people who stood beside the family. She also writes about advocating for her vulnerable child and navigating the demands of caring for two young sons while protecting her marriage, ministry, and family life.
Carried by grace and community
Alongside Luke’s illness, the family faced her father-in-law’s cancer diagnosis and eventual palliative care. His own reflections add another layer of grief, courage, and faith to the book. Booyse pays tribute to the doctors, nurses, friends, and prayer warriors who helped carry them through. Her story will encourage parents, caregivers, and believers facing circumstances they cannot control. It is a reminder that God’s faithfulness is not only found in healing or answered prayer, but also in the grace that sustains us one day at a time.
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Date published: 07/09/2026
Feature image: Sourced from original article published in the September issue of JOY! Magazine
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